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Hear for all”: A special club for patients with external ear deformity

Author: 
Dr. Hetal Marfatia, Dr. Ratna Priya, Dr. Nilam Sathe and Dr. Shampa Mishra
Subject Area: 
Health Sciences
Abstract: 

Hear for all club started at the KEM hospital, Mumbai is an autonomous and selfless association that is dedicated to patients with congenital external ear deformity. Here, we focus on evaluating all patients with microtia and providing them with the best treatment plan. It has been one of the first efforts of its kind in the country. It works as a support group. Methods: Our interdisciplinary team consists of an ENT surgeon, a plastic surgeon, an audiologist, a dentist, a speech therapist, a paediatrician, radiologist, paediatric cardiologist and paediatric nephrologists and we all work together to give the child the best coordinated care . Activities include complete ENT and head and neck evaluation of the patient to rule out syndromic features, Baha trial, Baha surgery and holding meetings which give an opportunity to the patients and their families to interact, share their experiences and motivate each other Results: Beginning in 2011, at present we have a group of 60 patients of congenital external ear deformity which include 40 children and the rest are adults. Out of the 60 patients, 12 patients have undergone Baha surgery. Conclusion: Our club helps us to reach out to patients with microtia and their families and bring all of them together at one place and provide information, reassurance and guidance to deal with the microtia. Also, the presence of an interdisciplinary team helps in planning the best treatment options for the patient.

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